Sites worth seeing
In my last report I mentioned I’m attracted to all things motivational and uplifting in regards to “MS recovery”. Unarguably this is an insidious illness which, if left unmanaged (for want of a better word), will chug away – stealthily corroding our nerve sheaths and eroding our functionality. Even the relapsing remitting phase will do that, with each relapse doing unseen damage – as was the case for me for many years while undiagnosed. Then we metaphorically wake up one day and find that geriatrics at the shopping mall can outrun us, or the footpath (sidewalk) rises rapidly to meet our outstretched noses. C’est la vie .. it’s still a beautiful world and, believe it or not, we’re very fortunate – any of us – to be alive and pumping gas in and out. MS may not be the best thing to have, but (for most of us) rarely is it the worst. We’re alive, and where there’s life there’s hope .. and we have at our disposal a myriad ways of learning how we can overcome MS.
Obviously I’m in a philosophical mood today. Life has dealt us our cards, and it’s then a matter for us (with the best help we can muster) to decide how to play our hands. And if MS is a reality, it’s how we deal with it that matters – in my view at least. If you’re reading my site today or have read anything I’ve written in the past I suspect you also might agree with that. It’s against such a backdrop that I’d like to highlight today 3 sites which I’ve recently discovered and which might assist you on the sometimes bumpy road to recovery, or inspire you along such travels.
The first is a revised and updated site of Professor George Jelinek who I’ve mentioned previously. George as you know is a medical specialist with MS, who’s a veritable fountainhead of enormously useful and efficacious information on MS recovery. At that new link George has updated and revised material which earlier appeared on his “Taking Control of MS” website, and taken the web-resource on that site much further. (Incidentally I feel very fortunate indeed to have contracted MS in the modern era, after publication of his earlier text.) George’s new (”Overcoming MS”) website has additional material, new synergies with other recovery information, and new and useful functionalities – for instance the Q&A page and the information on it; the ability to download and print out in glossy PDF format what you “can” and “can’t” eat on the Swank/Jelinek diet; and the printable reference pages. I’m also a great fan of podcasts – I love for example listening to the Writers’ Almanac and Canadian Broadcasting Commission’s (CBC) “Writers & Co” while I clean the kitchen each night (my task) – and I see that the good professor George has now also taken to the airwaves with MS-recovery podcasts.
The other 2 sites I’ve stumbled across recently are firstly a really interesting site by an anonymous guy in the US who uses the nom-de-keyboard of Man-on-a-MSion. His mission is a worthy one, and I like his wisdom. I’ve added his site to my favourites, listed to the right here. And lastly I draw your attention to a truly gutsy and inspirational peace-time march. It’s written by an Australian blogger – a friend, though we live in different parts of this wide brown land. She recently completed one of the pilgrimage routes of the Way of Saint James in Spain – hurling her “rollator” (wheeled walking frame) ahead of her. It’s great reading .. see the Wobbly Teetering blog link which I’ve also listed here.
But you may want to start with the new George Jelinek site and bookmark it as a reference point for MS knowledge – my guess is you’ll find it very useful.
All the best with your own recovery, KB
Hahaa ta Ken, you’re too kind. ‘Taking control of MS’ certainly laid good foundations for the taking control of a rollator. I like to think of it as resistance [pronounce with suitably bad french accent].
much cheer and résistance
Ken – in 2001, I became ill with neurological symptoms – I’d had many over the years but put them down to hard farm work and getting older. I came across the treatment of Vitamin B1, used successfully by veternarians in Australia back as far as 1968, for similar symptoms – give or take a few and put into human terms – to those in the livestock disease Polioencephalomalacia – PEM. Each dose of 250mg VB1 tablet, suppressed my symptoms for a few hours.
After 18 months of experimentation, research, trial and error, my symptoms started to reverse – it took another year to gain good health. I experimented with other things – those with similar properties to VB1, also gave relief. I found it wasn’t what I took which mattered, but how it worked in my body which made the difference. Each dose increased my breathing, increased oxygen circulation and oxygen content.
Research found many human illnesses and conditions are known to lack oxygen in the body. MOT – Mini Oxygen Treatment – as I call it, I guess works like HBOT which is used for many illnesses – but is probably expensive, uses a machine and can cause damage to the body if used incorrectly. MOT is cheap, taken at home, pretty safe, used 6 times a day will give good coverage 24/7. I had many tests, but no diagnosis was given in relation to my symptoms and no medical cause was found.
I’ve just discovered, that I’ve been treating my symptoms and not a diagnosis or cause.
My symptoms crossed over many illnesses and conditions including MS, Cerebral palsy, Tourette’s CJD and Kru. I found PEM symptoms are similar to CJD and Kuru.
I’m happy to share my research and findings.
Regards
Elaine
Thank you Elaine .. and my apologies for not replying sooner (inter alia, I’ve been away). That’s very interesting thank you – is it home administered bottled oxygen? I’m interested to understand the basics and build from there, Best wishes, KB
Ken,
Have just found your site again. I found what I take, increases my temperature and heart rate (as if excercising), it increases muscle action, this increases breathing (the diaphram is the principle muscle of breathing), increases blood flow, which carries oxygen to every tissue, cell, organ, nerves etc., of the body.
That’s why I call it MOT – Mini Oxygen Treatment – no machines, no oxygen bottles etc., just increased breathing natural oxygen from the atmosphere. The treatment suppressed my symptoms within minutes for a few hours. I learned from my experience, that when we’re ill, we can’t breath in enough oxygen to keep our body healthy, or to repair it when we are ill.
Research has found many illlnesses and conditions lack oxygen in the body, tissues, cells, nerves, organs etc., so by increasing the oxygen circulation and oxygen content, MOT, I believe, will give many people better health, regardless of illness, diagnosis, symptoms or cause.
I will add here, that several other people, with all sorts of illnesses and conditions, said they had better health while taking what I suggested. A man with MD, said his legs felt better in a week, he also had Diabetes, and said his levels were better. A friend with MS, took what I suggested years ago, and for a couple of days while she was taking it, had less shaking of her hands. She didn’t continue when she went back home. It’s hard to get some to “look outside the square”.
I did a lot of experimentation, research, trial and error when I was really ill. I took small doses, big doses, no doses, a few different things together as a dose, but found that I only needed one dose at the right dose quantity to suppress my symptoms. I experimented with many things – some which probably have never been scientifically tested for medicinal purposes – some worked like VB1 in suppressing the symptoms – these had similar water soluble properties – so I found it wasn’t what I took which mattered, but how the dose worked in my body, which made the difference. I experimented with the dose rates also – I used take 3 to 5 doses a day, but recently I found, 6 doses a day would give better coverage 24/7.
Suggested doses
250mgs Vitamin B1 tablet – 3 times a day
also 1000mgs Vitamin C tablet – 3 times a day
That’s 6 doses a day.
Please see your doctor before changing any medication.
When I was ill, I rose the VB1 and VitC, but believe at the above quantities taken as 6 doses a day, will give relief. It took about 3 weeks before I noticed any difference – and at the time, I was only taking 250mgs VB1 as directed on the bottle 3 times a day – so by adding 3 doses of VitC (at the suggested rate on the bottle) that’s 6 doses.
Please email if you have any questions – or here, it may help others.
Regards
Elaine
I wrote in the above post -”It took about 3 weeks before I noticed any difference”.
I found each dose suppressed my symptoms within minutes, and after 3 weeks I noticed my health improving – little by little – but I was feeling better.
I read on another site, that Dr. Jelinek supports excercise to help MS. Excercise increases the heart rate and inreases breathing, it increases blood flow, which carries oxygen to every cell, tissue, organ, nerve etc., in the body. A few minutes after excercise, the respiratory system levels out and is back to square one.
I experimented and found MOT increased my heart rate, blood flow etc., the same as excercise – but by taking it several times a day, it gives the continued benifit 24/7, increasing oxgyen to every cell, nerve etc., which eventually reversed most of my neurological symptoms.
Elaine
ainee.pv@hotmail.com
I see that this is an old post but it still works for me. MS has done great damage to me and it helps to read someones words that it has touched and they are still so positive. My fav quote is , “Where there is life there is hope”.
Thanks Nicole. I don’t blog much these days, mostly because I’ve said much of what I wanted to say .. but I keep it active as a public service. Many people have helped me on my MS journey, and it’s my tiny way of giving something back. I’m sorry to hear that MS has done great damage to you, and wish you my best wishes. I have recently started on Low Dose Naltrexone, and might blog on that shortly. It’s highly therapeutic, cheap, and reputedly slows the progress .. it works for me and (for me, and possibly most people) has no adverse effects. I’d encourage you to research it and to discuss with a doctor who doesn’t have a closed mind on it. Best wishes, KB
Like you I too contracted MS, over 15 years ago. As I watched myself slowly degrade I couldn’t help but think, there had to be another way, maybe Western medicine doesn’t have all the answers. So I started my trek to discover what other options were available to me. I discovered Chinese medicine such as acupuncture, Emi Qi Gong and herbs. Energy medicine like Healing Touch and meditation. I found, over several years that my symptoms not only slowed and then stopped but I actually found myself recovering…getting better.
I started a blog with the purpose of sharing with others the information I found and that disease is NOT a one way street. Please check out my site at: http://www.myongoingrecovery.com and let me know what you think. If you like it I would appreciate any recommendations you could give.
Dear Tim .. (I’m guessing it’s Tim, from replies on your website) .. I like it, I like it a lot. I think you’re on a path of recovery and am armed with a philosophy which will assist you. As I have said in one or more of my blogs, I actively seek out positive stories of recovery .. and accordingly I congratulate you on your blog. I will place it as a link on mine. The only improvement I could suggest is perhaps more detail – such as the title of the book your friend Daniel recommended (as I’d be interested in reading it myself). Take care, and best wishes with your own recovery, KB.
ps: Ian Gawler, who I’ve mentioned now and again, takes the view that if you break your arm then mentally you need to stay out of the way while your body heals itself .. at its best your body is capable of self-healing – and he takes the same view with disease (which is why meditation helps).
Dear Ken,
Thanks so much for the kind note. We go down this path, pushed by Western medicine that we must except this disease and disibility that has been thrust upon us and except that this is all out of our control. But the funny thing is, it’s not out of our control, in fact WE can call all the shots. Sadly, Western medicine is basically in it for the money so you’ll never see any recovery from them. We need to place this firmly in OUR hands. Only then will we see the recovery and enlightenment we so desire. P.S. The title of the book that started it all for me was: The Healing Code by Dermot O’Connor
Thanks Tim .. I’ll have a read. All the best, and I look forward to reading more, KB